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Data governance and ethics

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Using big data ethically

At the Centre for Big Data Research in Health (CBDRH), it is essential to use health and medical big data in ways that comply with relevant law, regulation and policy. We respect the interests of individuals and the public and deliver trustworthy outcomes.

Our relevant capabilities include:

  • high-level understanding of Australian legal and ethical frameworks for collection use and disclosure of health and medical big data
  • unparalleled experience in navigating governance and ethics processes for state and territory and national health datasets, including linked administrative data and electronic medical records
  • experience in governing and operating secure cloud-based data analysis facilities.

Projects

E-Research Institutional Cloud Architecture (ERICA)

The E-Research Institutional Cloud Architecture (ERICA) platform provides a secure, customisable, cloud-based computing environment for researchers using sensitive data.

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Health and medical research in Australia significantly improve the health of the population. But a major research challenge remaining is the timely identification of eligible research participants.

Coordinated Access for Data, Researchers and Environments (CADRE)

The Coordinated Access for Data, Researchers and Environments (CADRE) project establishes a shared and distributed sensitive data access management platform for the social sciences and related disciplines.

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