Health for help
Investigating the feasibility and acceptability of health coaching intervention for cancer caregivers
Background to the study
When an individual is diagnosed with cancer, their spouse, child/ren, parents or friends often take on the caregiving role to support them with their diagnosis and associated treatments and while this can provide significant benefits for both the patient and the health care system, . Some authors even go as far as to say that .
A report for Palliative Care Australia titled “ ” highlighted the need for why we need to take caregiver health seriously (especially when many cancer caregivers end up providing end of life care) and where the gaps are in how we are currently doing things:
“The current provision of services for informal carers has been described as ‘crisis intervention’,as it is only in crisis situations of imminent or apparent breakdown that services respond. Those carerswho appear to be coping in their role and do not request services are assumed to haveno unmet supportive needs.” (p.31).
In addition to providing day-to-day practical support, . This can lead to and .
This additional stress in caregivers can be caused from the Burden of Care: . Rising burden of care levels are ; and we now understand that mental health .
Stress has also been identified as Ի changing dietary behaviours as ‘’. showed that most people experience a change to their eating patterns when they are stressed. On average, 30% of people have an increase in food intake and appetite and 48% experience a decrease in their appetite or food intake when they are stressed. Additionally, Macht (2008) found that emotions, as well as mood has been found to affect eating responses such as the motivation to eat, the speed in which we eat, the amount we ingest, food choices and metabolism and digestion. So, while studies have shown that caregivers experience high levels of stress, and that stress can impact dietary behaviours, we still do not know if and what the connection could be in cancer caregivers.
Why looking at caregiver health and nutrition is important
Given that cancer caregivers Ի as mentioned, stress can influence dietary behaviours and food choices, it is plausible to consider that the dietary behaviours of caregivers might change when they take on the caregiving role. To our knowledge, there have been no specific investigations that have investigated this. There is strong evidence linking increased levels of Ի heightened levels of stress can , Ի . Food is also considered a cheap and available resource that .
So, with the increased stress and decline in mental health commonly experienced in cancer caregivers, there is potentially an increased risk for poorer dietary behaviours, and with poorer dietary behaviours the risk of chronic disease increases. This could then potentially worsen the load on the healthcare system where instead of being able to provide care and reduce the burden on the healthcare system, caregivers could potentially become another patient requiring assistance.
Significance of our study
As informal caregivers play a substantial and significant role in the delivery of cancer care services in the Australian healthcare system, we believe that maintaining and supporting a caregiver’s ability to provide care is not just important to prevent them from potentially becoming a patient themselves, but also to allow cancer care services to continue to effectively be delivered in the clinical setting. While there are several support services available for caregivers including respite and counselling services, there are no services (that we are aware of) that address the additional risk factors for chronic disease including nutritional intake.
What our study will look at
After conducting research with cancer caregivers, oncology health clinicians and those working in cancer supportive care, we learnt about what they believed would be necessary to best support cancer caregivers and have created a program incorporating their suggestions.
This program is called Health for Help and applies a health coaching model which can be individualised to each caregiver’s unique set of circumstances. Given the important role that caregivers play in helping cancer patients, this research will allow us to see if a health coaching intervention could possibly make a difference to caregiver’s nutrition and therefore, how they feel.
Participate
What is involved if I choose to participate?
If you choose to participate in the study, you will have the opportunity to participate in a caregiver-specific health coaching initiative and there will also be some surveys for you to fill out. This is what will be required and how much time it will take.
Rebecca Warren
If you would like to speak to a member of the research team, please fill out your details and a member of the research team will be in touch with you.
If you would like to participate in the research study, please click on the ‘I’d like to participate’ button so you can enrol yourself in the study and get started!
